988368
شنبه 3 آذر 1403
دوره 16، شماره 4 - ( December 1397 )
جلد 16 شماره 4 صفحات 370-361 |
برگشت به فهرست نسخه ها
Download citation:
BibTeX | RIS | EndNote | Medlars | ProCite | Reference Manager | RefWorks
Send citation to:
BibTeX | RIS | EndNote | Medlars | ProCite | Reference Manager | RefWorks
Send citation to:
Lalehgani Dezaki M, Ghaedamini Harouni G, Ahmadi S, Vameghi M, Sajjadi H, Ghafari M. Health-Related Quality of Life of Mothers of Children With Intellectual Disability. Iranian Rehabilitation Journal 2018; 16 (4) :361-370
URL: http://irj.uswr.ac.ir/article-1-826-fa.html
URL: http://irj.uswr.ac.ir/article-1-826-fa.html
Health-Related Quality of Life of Mothers of Children With Intellectual Disability. مجله انگلیسی زبان توانبخشی. 1397; 16 (4) :361-370
چکیده: (5546 مشاهده)
Objectives: Disability occurs as a sudden and unexpected incident, and coping with it depends on the conditions and lifestyle, the remaining abilities, cooperation of other family members, and the role of rehabilitation team. Rehabilitation work includes medical, professional and social rehabilitation teams. The family is also defined as an essential member of the social rehabilitation team. The present study aimed to assess the quality of life of mothers of children with intellectual disabilities, as an important member of the social rehabilitation team.
Methods: In this analytical and descriptive study, statistical population consisted of all Mothers of Mentally Retarded Children (MMRC) (educable, trainable and isolated), and Mothers of Children with Normal Intelligence (MCNI) in Shahr-e-Kord City, Iran. Total sample size was considered to be 306. For gathering data, the 36-Item Short Form Health Survey instrument, validated in Iran, and for analyzing the data 1-way ANOVA, linear regression and discriminant analysis were used.
Results: In terms of all quality of life dimensions and total score, there was a significant difference between the two groups (P<0.001) and MCNI group scored higher compared to MMRC group. The greatest difference between the two groups was related to physical function (effect size=40.7%), and the least was related to limitations in usual role activities because of emotional problems (effect size=30.9%).
Discussion: Mothers are an important mediator in providing rehabilitation services (secondary or tertiary prevention) to their children. Once their roles are neglected in the rehabilitation team work, the secondary and tertiary prevention activities for the disabled child will not be effective, and in the near future, mothers will be among the most vulnerable groups requiring rehabilitation services. Therefore, during the provision of secondary and tertiary prevention services for children, mothers’ health status should also be monitored for the purpose of primary prevention.
Methods: In this analytical and descriptive study, statistical population consisted of all Mothers of Mentally Retarded Children (MMRC) (educable, trainable and isolated), and Mothers of Children with Normal Intelligence (MCNI) in Shahr-e-Kord City, Iran. Total sample size was considered to be 306. For gathering data, the 36-Item Short Form Health Survey instrument, validated in Iran, and for analyzing the data 1-way ANOVA, linear regression and discriminant analysis were used.
Results: In terms of all quality of life dimensions and total score, there was a significant difference between the two groups (P<0.001) and MCNI group scored higher compared to MMRC group. The greatest difference between the two groups was related to physical function (effect size=40.7%), and the least was related to limitations in usual role activities because of emotional problems (effect size=30.9%).
Discussion: Mothers are an important mediator in providing rehabilitation services (secondary or tertiary prevention) to their children. Once their roles are neglected in the rehabilitation team work, the secondary and tertiary prevention activities for the disabled child will not be effective, and in the near future, mothers will be among the most vulnerable groups requiring rehabilitation services. Therefore, during the provision of secondary and tertiary prevention services for children, mothers’ health status should also be monitored for the purpose of primary prevention.
نوع مقاله: پژوهشي |
موضوع مقاله:
مدیریت توانبخشی
دریافت: 1396/10/19 | پذیرش: 1397/4/2 | انتشار: 1397/7/9
دریافت: 1396/10/19 | پذیرش: 1397/4/2 | انتشار: 1397/7/9
فهرست منابع
1. Mirkhani SM. [Principles of rehabihhtation (Persian)]. Tehran: University of Social Welfare and Rehabilitation Sciences; 2011.
2. World Health Organization. World report on disability. Geneva: World Health Organization; 2011.
3. Mugno D, Ruta L, D'Arrigo VG, Mazzone L. Impairment of quality of life in parents of children and adolescents with pervasive developmental disorder. Health and Quality of Life Outcomes. 2007; 5(1):22. [DOI:10.1186/1477-7525-5-22] [DOI:10.1186/1477-7525-5-22]
4. Taghizadeh H, Asadi R. [Comparative analysis of quality of life in mothers of children with mental disability and mothers of normal children (Persian)]. Journal of Rehabilitation Sciences. 2015; 4(8):66-74.
5. Fairthorne J, Jacoby P, Bourke J, de Klerk N, Leonard H. Onset of maternal psychiatric disorders after the birth of a child with intellectual disability: A retrospective cohort study. Journal of Psychiatric Research. 2015; 61:223-30. [DOI:10.1016/j.jpsychires.2014.11.011] [DOI:10.1016/j.jpsychires.2014.11.011]
6. Malekshahi F, Falahi S. [Psychosocial problems of parents of mentally disabled children covered by Khorramabad Welfare Center (Persian)]. Lorestan University of Medical Sciences. 2017; 18(3):42-51.
7. Davarmanesh A. Mentally retarded children education & rehabilitation. Tehran: University of Social Welfare and Rehabilitation Sciences; 2011. [PMID] [PMID]
8. Dadkhah A, Ghaffar Tabrizi R, Hemmati S. [Quality of life of disabled children's mother: A comparative study (Persian)]. Iranian Rehabilitation Journal. 2009; 7(2):36-7.
9. Brown RI, MacAdam Crisp J, Wang M, Iarocci G. Family quality of life when there is a child with a developmental disability. Journal of Policy and Practice in Intellectual Disabilities. 2006; 3(4):238-45. [DOI:10.1111/j.1741-1130.2006.00085.x] [DOI:10.1111/j.1741-1130.2006.00085.x]
10. Mohaqeqi Kamal SH, Basakha M, Ghaedamini Harouni G. Women's well-being in Iran: Territorial analysis using a multidimensional approach. Social Indicators Research. 2018; 137(3):1061-72. [DOI:10.1007/s11205-017-1656-7] [DOI:10.1007/s11205-017-1656-7]
11. Mooney A. Quality of life: Questionnaires and questions. Journal of Health Communication. 2006; 11(3):327-41. [DOI:10.1080/10810730600614094] [DOI:10.1080/10810730600614094]
12. Felce D, Perry J. Quality of life: The scope of the term and its breadth of measurement. In: Brown RI, editor. Quality of Life for People With Disabilities: Models, Research and Practice. Cheltenham: Stanley Thornes; 1997.
13. Ahmadi K, Khodadadi G, Anisi J, Abdolmohammadi E. Problems of families with disabled children. Journal of Military Medicine. 2011; 13(1):49-52.
14. Schieve LA, Blumberg SJ, Rice C, Visser SN, Boyle C. The relationship between autism and parenting stress. Pediatrics. 2007; 119(Suppl. 1):S114-S21. [DOI:10.1542/peds.2006-2089Q] [DOI:10.1542/peds.2006-2089Q]
15. Chu J, Richdale AL. Sleep quality and psychological wellbeing in mothers of children with developmental disabilities. Research in Developmental Disabilities. 2009; 30(6):1512-22. [DOI:10.1016/j.ridd.2009.07.007] [DOI:10.1016/j.ridd.2009.07.007]
16. Davis E, Shelly A, Waters E, Boyd R, Cook K, Davern M. The impact of caring for a child with cerebral palsy: Quality of life for mothers and fathers. Child: Care, Health and Development. 2010; 36(1):63-73. [DOI:10.1111/j.1365-2214.2009.00989.x] [DOI:10.1111/j.1365-2214.2009.00989.x]
17. Leung CYS, Li Tsang CWP. Quality of life of parents who have children with disabilities. Hong Kong Journal of Occupational Therapy. 2003; 13(1):19-24. [DOI:10.1016/S1569-1861(09)70019-1] [DOI:10.1016/S1569-1861(09)70019-1]
18. Moore A, Kornblet S. Advancing the rights of persons with disabilities: A US–Iran dialogue on law, policy, and advocacy. Bergen County: Blue Law; 2011.
19. Cadman D, Rosenbaum P, Boyle M, Offord DR. Children with chronic illness: Family and parent demographic characteristics and psychosocial adjustment. Pediatrics. 1991; 87(6):884-9. [PMID] [PMID]
20. Emerson E, Hatton C, Llewellyn G, Blacker J, Graham H. Socio-economic position, household composition, health status and indicators of the well-being of mothers of children with and without intellectual disabilities. Journal of Intellectual Disability Research. 2006; 50(12):862-73. [DOI:10.1111/j.1365-2788.2006.00900.x] [DOI:10.1111/j.1365-2788.2006.00900.x]
21. Lin JD, Hu J, Yen CF, Hsu SW, Lin LP, Loh CH, et al. Quality of life in caregivers of children and adolescents with intellectual disabilities: Use of WHOQOL-BREF survey. Research in Developmental Disabilities. 2009; 30(6):1448-58. [DOI:10.1016/j.ridd.2009.07.005] [DOI:10.1016/j.ridd.2009.07.005]
22. Payot A, Barrington KJ. The quality of life of young children and infants with chronic medical problems: Review of the literature. Current Problems in Pediatric and Adolescent Health Care. 2011; 41(4):91-101. [DOI:10.1016/j.cppeds.2010.10.008] [DOI:10.1016/j.cppeds.2010.10.008]
23. Romeo D, Cioni M, Distefano A, Battaglia L, Costanzo L, Ricci D, et al. Quality of life in parents of children with cerebral palsy: Is it influenced by the child's behaviour? Neuropediatrics. 2010; 41(03):121-6. [DOI:10.1055/s-0030-1262841] [DOI:10.1055/s-0030-1262841]
24. Fadakar Sogheh R, Abbasi S, Khaleghdoost T, Atrkar Roshan Z. [Family's mentally retarded child problems under protection of welfare centers (Persian)]. Journal of Holistic Nursing and Midwifery. 2014; 24(3):38-47.
25. Abasi S, Fadakar K, Khaleghdoost T, Sedighi A, Atrkar Roshan Z. [Survey the problems of families with mentally retarded child covered by Guilan Welfare Centers in 2010 (Persian)]. Journal of Holistic Nursing and Midwifery. 2010; 20(1):33-9.
26. Khanjari S, Oskouie F, Eshaghian Dorche A, Haghani H. [Quality of life in parent of children with leukemia and its related factors (Persian)]. Iran Journal of Nursing. 2013; 26(82):1-10.
27. Sajjadi H, Vameghi M, Ghazinour M, Khodaei Ardakani M. Caregivers' quality of life and quality of services for children with cancer: A review from Iran. Global Journal of Health Science. 2013; 5(3):173-82. [DOI:10.5539/gjhs.v5n3p173] [DOI:10.5539/gjhs.v5n3p173]
28. Zandi H. [The relationship between coping strategies and mental health in parents of educable mental retardation and normal children in Sanandaj (Persian)]. Tehran: University of Social Welfare and Rehabilitation Sciences; 2006.
29. Colver A. Measuring quality of life in studies of disabled children. Paediatrics and Child Health. 2008; 18(9):423-6. [DOI:10.1016/j.paed.2008.05.011] [DOI:10.1016/j.paed.2008.05.011]
30. Karimi Dermani HR. [Rehabilitation specific groups emphasized on social work services (Persian)]. Tehran: Roshd; 2011.
31. Montazeri A, Goshtasebi A, Vahdaninia M, Gandek B. The short form health survey (SF-36): Translation and validation study of the Iranian version. Quality of Life Research. 2005; 14(3):875-82. [DOI:10.1007/s11136-004-1014-5] [DOI:10.1007/s11136-004-1014-5]
32. Montazeri A, Gashtasbi A, Vahdani Niya MS. [Translation, validity and reliabity of percian version of SF-36 (Persian)]. Payesh. 2005; 5(1):49-56.
33. Mobaraki A, zadeh Bagheri G. [Comparison of knowledge and attitude of mothers with mentally retarded children with those without mentally retarded children in Gachsaran (Persian)]. Armaghan-e Danesh. 2003; 8(21):81-90.
34. Haqranjbar F, Kakavand A, Borjali A, Bermas H. [Resiliency and quality of life among mothers of disabled child (Persian)]. Quarterly Journal of Health Psychology. 2012; 1(1):177-87.
35. Rahimi S, Fadakar Soghe R, Tabri R. [Related factors with quality of life among preschool children with cancer (Persian)]. Journal of Holistic Nursing and Midwifery. 2014; 24(1):30-9.
36. Amiri Majd M, Laya Q. [Comparison of quality of life and behavioral disorders in children with Down syndrome, pediatric and normal children (Persian)]. Behavioral Sciences. 2010; 2(6):21-38.
