Volume 16, Issue 3 (September 2018)                   Iranian Rehabilitation Journal 2018, 16(3): 297-306 | Back to browse issues page


XML Print


Download citation:
BibTeX | RIS | EndNote | Medlars | ProCite | Reference Manager | RefWorks
Send citation to:

Masoumi T, Shafaroodi N, Razvan Z. Participation of People With Schizophrenia in Everyday Life: Family’s Perspective. Iranian Rehabilitation Journal 2018; 16 (3) :297-306
URL: http://irj.uswr.ac.ir/article-1-850-en.html
1- Iran Psychiatric Hospital, Iran University of Medical Sciences, Tehran, Iran.
2- Department of Occupational Therapy, School of Rehabilitation Sciences, Iran University of Medical Sciences, Tehran, Iran.
3- 505 Psychiatric Hospital, AJA University of Medical Sciences, Tehran, Iran.
Abstract:   (4473 Views)
Objectives: People with chronic mental health condition like schizophrenia experience a lot of changes in their lives, in addition to their symptoms. The present study used a thematic analysis to explore the participation of people with schizophrenia in daily life from family’s perspective. It has uncovered some of the contributing factors in the everyday life participation of this group. 
Methods: Semi-structured interviews were held with 8 family members of patients with schizophrenia. All the interviews were recorded and transcribed verbatim. The data were then analyzed in 6 phases of thematic analysis.
Results: Three main themes and 10 subthemes were extracted from the interviews. The main themes included impaired function, family types, and treatment dimensions. The subthemes identified within the family circumstance theme were supportive family, pitying family, ignored family, and confused family.
Discussion: According to the findings, besides the effects of the disease and its treatment on the performance of people with schizophrenia, the family also has a substantial role in the participation of their ill member in daily life activities. Considering the identified effects of families on patients’ participation and their needs, designing family-based interventions and training programs can facilitate the participation of patients with schizophrenia in everyday life.
Full-Text [PDF 525 kb]   (1622 Downloads) |   |   Full-Text (HTML)  (1947 Views)  
Article type: Original Research Articles | Subject: Occupational therapy
Received: 2018/01/26 | Accepted: 2018/05/17 | Published: 2018/09/1

References
1. American Psychiatric Association. Diagnostic and statistical manual of mental disorders. Virginia: American Psychiatric Association; 2013. [doi.org/10.1176/appi.books.9780890425596]
2. Bejerholm U, Eklund M. Time use and occupational performance among persons with schizophrenia. Occupational Therapy in Mental Health. 2004; 20(1):27-47. [DOI:10.1300/J004v20n01_02] [DOI:10.1300/J004v20n01_02]
3. Bejerholm U, Eklund M. Engagement in occupations among men and women with schizophrenia. Occupational Therapy International. 2006; 13(2):100-21. [DOI:10.1002/oti.210] [PMID] [DOI:10.1002/oti.210]
4. Law M. Participation in the occupations of everyday life. American Journal of Occupational Therapy. 2002; 56(6):640-9. [DOI:10.5014/ajot.56.6.640] [PMID] [DOI:10.5014/ajot.56.6.640]
5. Marsh DT, Johnson DL. The family experience of mental illness: Implications for intervention. Professional Psychology: Research and Practice. 1997; 28(3):229. [DOI:10.1037/0735-7028.28.3.229] [DOI:10.1037/0735-7028.28.3.229]
6. Baronet AM. Factors associated with caregiver burden in mental illness: A critical review of the research literature. Clinical Psychology Review. 1999; 19(7):819-41. [DOI:10.1016/S0272-7358(98)00076-2] [DOI:10.1016/S0272-7358(98)00076-2]
7. Lowyck B, De Hert M, Peeters E, Wampers M, Gilis P, Peuskens J. A study of the family burden of 150 family members of schizophrenic patients. European Psychiatry. 2004; 19(7):395-401. [DOI:10.1016/j.eurpsy.2004.04.006] [PMID] [DOI:10.1016/j.eurpsy.2004.04.006]
8. Grandón P, Jenaro C, Lemos S. Primary caregivers of schizophrenia outpatients: Burden and predictor variables. Psychiatry Research. 2008; 158(3):335-43. [DOI:10.1016/j.psychres.2006.12.013] [PMID] [DOI:10.1016/j.psychres.2006.12.013]
9. Foussias G, Remington G. Negative symptoms in schizophrenia: Avolition and Occam's Razor. Schizophrenia Bulletin. 2010; 36(2):359-69. [DOI:10.1093/schbul/sbn094] [PMID] [PMCID] [DOI:10.1093/schbul/sbn094]
10. Glick ID, Stekoll AH, Hays S. The role of the family and improvement in treatment maintenance, adherence, and outcome for schizophrenia. Journal of Clinical Psychopharmacology. 2011; 31(1):82-5. [DOI:10.1097/JCP.0b013e31820597fa] [PMID] [DOI:10.1097/JCP.0b013e31820597fa]
11. Cara E, MacRae A. Psychosocial occupational therapy: An evolving practice. Boston: Cengage Learning; 2013.
12. Kielhofner G. Resaerch in occupational therapy: Methods of inquiry for enhancing practice. Philadelphia: FA Davis Company; 2006.
13. Carpenter C, Suto M. Qualitative research for occupational and physical therapists: A practical Guide. Hoboken, New Jersey John: Wiley & Sons; 2008.
14. Braun V, Clarke V. Using thematic analysis in psychology. Qualitative Research In Psychology. 2006; 3(2):77-101. [DOI:10.1191/1478088706qp063oa] [DOI:10.1191/1478088706qp063oa]
15. Gard DE, Kring AM, Gard MG, Horan WP, Green MF. Anhedonia in schizophrenia: Distinctions between anticipatory and consummatory pleasure. Schizophrenia Research. 2007; 93(1):253-60. [DOI:10.1016/j.schres.2007.03.008] [PMID] [PMCID] [DOI:10.1016/j.schres.2007.03.008]
16. Strauss GP, Gold JM. A new perspective on anhedonia in schizophrenia. American Journal of Psychiatry. 2012; 169(4):364-73. [DOI:10.1176/appi.ajp.2011.11030447] [PMID] [PMCID] [DOI:10.1176/appi.ajp.2011.11030447]
17. Wolf DH, Satterthwaite TD, Kantrowitz JJ, Katchmar N, Vandekar L, Elliott MA, et al. Amotivation in schizophrenia: Integrated assessment with behavioral, clinical, and imaging measures. Schizophrenia Bulletin. 2014; 40(6):1328-37. [DOI:10.1093/schbul/sbu026] [PMID] [PMCID] [DOI:10.1093/schbul/sbu026]
18. Bellack AS, Morrison RL, Wixted JT, Mueser KT. An analysis of social competence in schizophrenia. The British Journal of Psychiatry. 1990; 156(6):809-18. [DOI:10.1192/bjp.156.6.809] [PMID] [DOI:10.1192/bjp.156.6.809]
19. Blanchard JJ, Mueser KT, Bellack AS. Anhedonia, positive and negative affect, and social functioning in schizophrenia. Schizophrenia Bulletin. 1998; 24(3):413-24. [DOI:10.1093/oxfordjournals.schbul.a033336] [PMID] [DOI:10.1093/oxfordjournals.schbul.a033336]
20. Semkovskaa M, Bédard MA, Godbout L, Limoge Fdr, Stip E. Assessment of executive dysfunction during activities of daily living in schizophrenia. Schizophrenia Research. 2004; 69(2):289-300. [DOI:10.1016/j.schres.2003.07.005] [DOI:10.1016/j.schres.2003.07.005]
21. Sutton D. Recovery as the re-fabrication of everyday life: Exploring the meaning of doing for people recovering from mental illness [PhD Desertation]. Auckland: Auckland University of Technology; 2008.
22. Lefley HP. Culture and chronic mental illness. Psychiatric Services. 1990; 41(3):277-86. [DOI:10.1176/ps.41.3.277] [DOI:10.1176/ps.41.3.277]
23. Lo´pez SR, Polo AJ, Karno M, Hipke KN, Jenkins JH, Vaughn C, et al. Ethnicity, expressed emotion, attributions, and course of schizophrenia: Family warmth matters. Journal of Abnormal Psychology. 2004; 113(3):428-39. [DOI:10.1037/0021-843X.113.3.428] [PMID] [DOI:10.1037/0021-843X.113.3.428]
24. Snowden LR. Explaining mental health treatment disparities: Ethnic and cultural differences in family involvement. Culture, Medicine and Psychiatry. 2007; 31(3):389-402. [DOI:10.1007/s11013-007-9057-z] [PMID] [DOI:10.1007/s11013-007-9057-z]
25. Lipson JG, Meleis AI. Issues in health care of Middle Eastern patients. Western Journal of Medicine. 1983; 139(6):854-61. [PMID] [PMCID] [PMID] [PMCID]
26. Nilchaikovit T, Hill JM, Holland JC. The effects of culture on illness behavior and medical care: Asian and American differences. General Hospital Psychiatry. 1993; 15(1):41-50. [DOI:10.1016/0163-8343(93)90090-B] [DOI:10.1016/0163-8343(93)90090-B]
27. Bademli K. What to Know about schizophrenia caregiver support. Toronto: International Journal of Emergency Mental Health and Human Resilience; 2015. [PMID]
28. Wlnefield HR, Harvey EJ. Needs of Family Caregivers in Chronic Schizophrenia. Schizophrenia Bulletin. 1994; 20(3):557-66. [DOI:10.1093/schbul/20.3.557]
29. Chien WT, Norman I. Educational needs of families caring for Chinese patients with schizophrenia. Journal of Advanced Nursing. 2003; 44(5):490-8. [DOI:10.1046/j.0309-2402.2003.02832.x] [DOI:10.1046/j.0309-2402.2003.02832.x]
30. Staring A, Mulder C, Duivenvoorden H, De Haan L, Van der Gaag M. Fewer symptoms vs. more side-effects in schizophrenia? Opposing pathways between antipsychotic medication compliance and quality of life. Schizophrenia Research. 2009; 113(1):27-33. [DOI:10.1016/j.schres.2009.05.022] [PMID] [DOI:10.1016/j.schres.2009.05.022]
31. Swartz MS, Perkins DO, Stroup TS, Davis SM, Capuano G, Rosenheck RA, et al. Effects of antipsychotic medications on psychosocial functioning in patients with chronic Schizophrenia: Findings from the NIMH CATIE Study. American Journal of Psychiatry. 2007; 164(3):428-36. [DOI:10.1176/ajp.2007.164.3.428] [PMID] [DOI:10.1176/ajp.2007.164.3.428]
32. Staring ABP, Mulder CL, Duivenvoorden HJ, Haan LD, Gaag MVd. Fewer symptoms vs. more side-effects in schizophrenia? Opposing pathways between antipsychotic medication compliance and quality of life. Schizophrenia Research. 2009; 113(3):27-33. [DOI:10.1016/j.schres.2009.05.022] [PMID] [DOI:10.1016/j.schres.2009.05.022]
33. Ritsnera M, Ponizovskya A, Endicottc J, Nechamkin Y, Rauchverger B, Silver H, et al. The impact of side-effects of antipsychotic agents on life satisfaction of schizophrenia patients: a naturalistic study. European Neuropsychopharmacology. 2002; 12(1):31-8. [DOI:10.1016/S0924-977X(01)00128-6] [DOI:10.1016/S0924-977X(01)00128-6]

Send email to the article author


Rights and permissions
Creative Commons License This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.

Designed & Developed by : Yektaweb