Volume 20, Issue 3 (September 2022)                   Iranian Rehabilitation Journal 2022, 20(3): 387-396 | Back to browse issues page


XML Print


Download citation:
BibTeX | RIS | EndNote | Medlars | ProCite | Reference Manager | RefWorks
Send citation to:

Beha A. Examining the Influencing Factors on Deaf Children in Treatment Procedure and Family Environment. Iranian Rehabilitation Journal 2022; 20 (3) :387-396
URL: http://irj.uswr.ac.ir/article-1-1496-en.html
Department of Audiology, School of Education and Rehabilitation, University of Tuzla, Tuzla, Bosnia and Herzegovina.
Full-Text [PDF 714 kb]   (1019 Downloads)     |   Abstract (HTML)  (1892 Views)
Full-Text:   (502 Views)
1. Introduction
The introduction of neonatal screening enables early detection and diagnosis of hearing impairment, which is a basic prerequisite for timely programming of activities with deaf children and their families [1]. Early intervention is carried out through specialized programs, by competent professionals, following the child’s abilities, needs, interests, and family priorities [2]. The basic precondition for successful early intervention is the expertise of professionals involved in these activities along with the involvement of parents in educational and rehabilitation processes. Rehabilitation processes play a key role in the development of the communication skills of deaf children. Working with families who choose different communication models requires specific knowledge and skills, to which experts are not always able to respond adequately [3]. 
Early childhood deafness is a unique and long-term challenge for parents, which includes communication difficulties, an increased need for health and audiological services, and specific educational requirements [4]. Deaf and hard-of-hearing children are mostly born in families of parents with no hearing impairment, and they usually do not have any experience and knowledge related to deafness and hearing impairment. Quittner et al. [5] shows that parents with healthy hearing can show higher levels of stress and express negative attitudes toward their child’s hearing impairment, which can be a cause of communication difficulties between parents and children. Following the diagnosis of hearing impairment in the child, the main question that arises for the parents is which method of communication to choose [6]. Parents who have no previous experience with deafness and hearing impairment, and whose preferred method of communication is oral speech [7], face a special challenge. Given that hearing impairment comes in many different levels and each has its specifics, parents and professionals must choose the method of communication that best suits the child’s abilities [8]. 
Parents of hearing-impaired children are prone to developing more specific stressors, which include communication difficulties, selection and use of hearing aids, as well as financial needs related to hearing impairment [5]. For these reasons, parents expect well-trained experts in each segment who have the necessary skills to work with deaf children. Experts’ views on this issue are divided, where deaf people are dissatisfied with rehabilitation services, and “respondents complain of a lack of professional knowledge and skills, including an inability to make an accurate diagnosis and a lack of knowledge about adequate services” [9]. In addition, the respondents stated “poor professional behavior and lack of attention to the emotional, psychological, and social effects of deafness.” Interviews [10] with parents and family members of deaf children found that respondents showed frustration with systemic barriers, including human resources and inexperienced physicians, inadequate training on how to communicate, and insufficient knowledge of methodology for working with deaf children. This is while Fitzpatrick et al. [11] shows that parents of deaf children are dissatisfied with the amount of information provided and the uncoordinated services of experts. Ching et al. [7] shows that parents required unbiased, descriptive information, and evaluative information from professionals, so that they could consider all options in making a decision that met their needs. They required continual support to implement their choices as they adjusted to their children’s changing needs. Insufficient knowledge and effort of experts and the lack of understanding of the needs of deaf children can lead to poor results in the rehabilitation process. 
Professionals during early intervention and diagnosis very often have a limited medical approach to deafness, while parents later discover other cultural and linguistic models and alternative approaches to understanding their children’s social identity [12]. Parents, very often, leave the responsibility of decision-making to treatment professionals, during early diagnosis and intervention because of the ambiguities related to hearing impairment and hearing loss and the large amount of new information that they encounter [13]. 
Young et al. shows that counseling does not equally cover parents with hearing impairment and parents without hearing impairment because of language barriers in communication with parents with hearing impairment and the opinion of experts that “deaf parents and parents with hearing impairment are sufficiently familiar with deafness as they already face this impairment and no further education is required [14].” 
Families need time to develop well-informed choices regarding language, communication, methodology, and technology use -including the use of cochlear implants- and, if they have not had much exposure to deafness, time for their perceptions to evolve. These parents have no prior experience with deafness or hearing loss, and they are asked to make definitive, often life-altering choices for their deaf or hard-of-hearing children [15]. 
According to Kushalnagar et al. [16], inappropriate communication in the family leads to the inability to communicate with deaf children and their parents, where deaf children face social barriers, which negatively affect emotional development and progress in educational processes. Educational and rehabilitation programs should provide answers to questions related to the needs of deaf children, unique knowledge and skills needed to work with people with hearing impairments and their families, and the ability to effectively educate parents about the decision to choose an adequate way of communication. 
The current research aims to establish the attitudes of experts and parents of deaf and hard-of-hearing children toward the influence factors that enable or limit the full development of deaf and hard-of-hearing children within the professional treatment procedure and family environment. The study hypothesized that there were no statistical differences in attitudes between the two groups of respondents in assessing the factors operating within the development period. 

2. Material and Methods
Sample of respondents 

The sample of respondents consisted of hearing parents and deaf parents of deaf and hard-of-hearing children (n=94) and experts in the field of diagnostics, rehabilitation, and education (n=123). The sample structure is shown in Figure 1.

Measuring instrument
The measuring instrument (Hasanbegović, 2016) was created to establish the respondent’s attitudes about the action of factors within the detection, diagnosis, education, and rehabilitation of deaf children to isolate the influencing factors. The development of the measuring instrument was preceded by preparatory activities related to the review of previous research and study of relevant literature, as well as analyzing the situation in the field within educational, health, and other institutions where deaf children are treated. The measuring instrument consisted of 14 statements, within which an assessment of the institutional approach and family environment was performed.
The reliability check of the measuring instrument was performed by Cronbach α, and the reliability coefficient of the whole questionnaire was 0.82. An interview was used to check the quantitative data, for which the created questions were scaled in a Likert-based questionnaire, according to the provided answers: 1=I agree, 2=I cannot decide, and 3=I do not agree. The data was collected in direct contact with all respondents. A sign language interpreter was hired to examine the deaf respondents.

3. Results
Table 1 shows the percentage of responses of both subsamples of respondents to the offered claims. Accordingly, the attitudes of parents and experts, on the 14 offered statements within the measuring instrument, were determined and presented through 3 offered answer possibilities: “I agree,” “I cannot decide,” and “I do not agree.” 

Both groups of respondents mostly disagreed on the following statements: provoking, ridiculing, abusing, and belittling deaf children; communication of deaf children with parents as the factor that bothers parents the most; underestimation of abilities and possibilities of deaf children by teachers; the inability of deaf children to adapt and to blend in a hearing environment; parents’ views on the use of their deaf children’s sign language and setting equal rules for deaf and hearing children. Differences in the answers of the respondents can be observed in the claims and statements related to the following items: in the decision-making process about the life of deaf and hard-of-hearing children, too much is decided by others (experts), the environment views deaf children as incompetent, parents having fears that their deaf children cannot take care of themselves. On the following claims and statements, no discrepancies and differences in respondents’ answers were found: the deaf child can acquire adequate knowledge as well as the hearing child, behavioral changes in the environment when noticing a deaf child with different communication skills, insufficient engagement of experts in equalizing the opportunities of deaf children. 
Table 2 presents the basic statistical parameters: arithmetic means (AM), standard deviations (SD), and variances for both subsamples of respondents.

According to the obtained data, the experts agreed with the following statement the most: “deaf children cannot succeed in life in a hearing environment” (AM=2,80), while the calculation of SD indicates average deviations from AM ranging from 0.49 for the same statement to 0.89 for the statement, “deaf children should not be set under the same rules and standards as hearing children.” The greatest agreement of the responses of the subsamples of the parents was obtained on the statement, “parents cannot cope with the problems of their deaf children” (AM=2.78). By calculating SD, it can be seen that the average deviations from AM for this subsample of respondents range from 0.55, “communicating with deaf children is something that bothers parents the most,” up to 0.91 for the statement, “the environment treats a deaf child as if he is incompetent and handicapped.” 
In addition, the results of the t-test are presented, where statistical significance at the level of 0.01 is defined. The results of the t-test indicate a statistically significant difference in AM of the respondent’s responses to the following statements: “parents cannot cope with the problems of their deaf children” (t=6.76); “the lives of deaf children are too much decided by others and decisions that can harm their development” (t=6.67); “communicating with deaf children is something that bothers parents the most” (t=6.88); “parents have fears that their deaf children will never be able to support themselves” (t=5.77); “deaf children cannot succeed in life in a hearing environment” (t=-3.86); and “parents are not happy because their deaf children use sign language” (t=4.58).
The discriminant analysis was used for further data processing. The testing was performed with Wilks lambda. The tested significance in the discriminant analysis was done via the F-test. Table 3 shows the statistical significance of Wilks lambda, where it is observed that the subsamples of respondents show statistically significant differences in the attitudes on the following statements: “parents cannot cope with the problems of their deaf children,” “the lives of deaf children are too much decided by others and decisions that can harm their development,” “communicating with deaf children is something that bothers parents the most,” “parents have fears that their deaf children will never be able to support themselves,” “deaf children cannot succeed in life in a hearing environment,” and “parents are not happy because their deaf children use sign language.” 

Concerning the magnitude of the F coefficient, the highest value was highlighted in the statement, “communicating with a deaf child is something that bothers parents the most” (F=47,308), where the largest difference was observed in the responses of subsamples.
To assess the differentiation of groups based on the corresponding discriminant function, the coefficient of discrimination was calculated at 0.706. The Wilks lambda was tested using the Chi-square test with a degree of freedom of (df=15) and the statistical significance is at the level of P=0.00. The value of the Bartlett Chi-square test of the discriminant variable Chi-Square. Amounts to 141 597. This value is higher than the limit value at 15 degrees of freedom with a significance level of P=0.00; therefore, it can be concluded that there is a statistically significant difference for discrimination of groups at the significance level of P<0.01. Based on the canonical correlation coefficient R=0.706, it is possible to form a statistically significant discriminant function in the space of statements to determine differences in attitudes between two groups of respondents at a significance level of P<0.01 (Table 4).

4. Discussion
According to the results obtained by discriminatory analysis, insight was provided into the differences in the attitudes of the subsamples of parents and experts in the treatment procedure. The isolated discriminatory factor in the statement, “parents cannot cope with the problems of their deaf children,” clearly indicates the existence of problems in cooperation and communication between parents and experts. These attitudes of experts may be caused by their dissatisfaction when it comes to the involvement and work of parents with their deaf children at home, as well as the overprotective and unrealistic attitude of parents toward deaf children. Insufficient information and education of parents, inadequate support system, the disorganization of the health system, and educational and social sectors can also be the cause of this situation. Although the problems faced by parents of deaf children are present and evident, no effort is seen in the professional treatment approach to change this situation. On the other hand, activities related to diagnosis, rehabilitation, education, and counseling require additional effort and commitment of parents in the form of overcoming initial stress and reaction to the birth of a deaf child, absences from work, financial benefits, placement in foster families, or relocation where there are centers for education and rehabilitation of deaf children, which requires organized support to families of deaf children. 
The following statement was also isolated by discriminatory analysis: “the lives of deaf children are too much decided by others and decisions that can harm their development.” Parents of deaf children and experts in the treatment process participate equally in working with deaf children and their success and progress largely depend on their compliance and application of appropriate, most acceptable methods of work with children. The obtained results indicate the presence of a serious problem due to their lack of coherence in the decision-making process. According to Umar and Muhammad [17], deaf boys have emotional problems in adolescence, such as anxiety, social immaturity, aggression, and poor understanding of their own and others’ emotions because of communication difficulties and unacceptable attitudes toward society. Their research reveals that the dominant attitude of parents and taking all decisions regarding education, entertainment, and social interaction, as well as insufficient involvement of the child and respect for its wishes and attitudes, contribute to the development of dissatisfaction and undesirable behaviors. In contrast, the powers of professionals in the treatment process are limited and the final decisions on all aspects of a deaf child’s life are made by the parents, who very often disregard the instructions provided by the experts. It is understandable to expect that parents of deaf children, because of subjective and sometimes overprotective attitudes, can make independent decisions, which in the long run will not give adequate results. It is necessary through a systematic and professional approach, involving parents in direct work with professionals and the deaf child to change such attitudes.
Further analysis isolated the statements, “communicating with deaf children is something that bothers parents the most” and “parents are not happy because their deaf children use sign language.” Although experts cite parents as the most important factor in achieving education, the results of overall rehabilitation, given the time children spend with parents, based on the results it can be concluded that experts are insufficiently informed with regards to a significant segment of work that relates to communication. This can result in the wrong orientation of the support system and programming activities with children and parents. The obtained data is in accordance with the study of Mitchell et al. and Eleweke & Rodda [15, 18] in which, the parents state that they do not have adequate support in terms of making decisions related to the selection of an appropriate communication model. Spencer et al. [19] shows that parents with healthy hearing who have deaf children are more persistent and direct, even intrusive, with regards to establishing communication with deaf children, but at the same time show less compliance for the child’s needs for visual and tactile exploration of the environment [20]. The results of the study of Zaidman-Zait [21] show that communication difficulties between parents and deaf children are the primary cause of stress for parents, with 38.7% of parents saying that they are not always able to understand their children’s speech, which often causes frustration in parents as they use different communication systems than their deaf children. The same author further states that the wishes of parents to communicate through oral speech are in complete contradiction with the wishes of their deaf children who use sign language to communicate with the environment.
Results obtained on an isolated statement “parents have fears that their deaf children will never be able to support themselves and take care of themselves” can be associated with difficulties in financial independence and the deaf people’s ability to take care of themselves and have an independent life. Parents cite communication difficulties and worries about the future of their deaf children as the main stressors [4]. Justifications for parents’ fears for the future and independence of their deaf children can be found in the statement that experts often do not forecast the progress of the deaf child, which is in line with the study of Mitchell et al. [15]; the research maintains that parents often express dissatisfaction because experts do not provide prognostic information about the children’s abilities, while Neuss states that clinicians are not aware that parents want such information or that they do not have prognostic indicators based on experience and practice in working with deaf people [22]. The results of the study of Jamieson and Zaidman-Zait [23], show that parents of deaf school-age children express concern about the educational opportunities of deaf children and independence and self-care and express the need for information related to their cognitive and socio-emotional development. Different results are found in the study of Crowe et al. [8], which states that parents of deaf children show extremely positive attitudes toward the abilities of deaf adults, especially on claims that describe their intellectual and professional abilities.

5. Conclusion
The results of the research showed a relationship between the influence of the communication system and the attitude of the environment toward deaf children, whereby the communication discriminatory factor is isolated. The biggest challenge for parents is to choose the most acceptable communication system, which corresponds to the child’s abilities and to the requirements that the family puts before the deaf child. The research also found that there is insufficient cooperation between parents of deaf children and experts in the treatment process, which is reflected in poor information of experts in terms of parental expectations, communication between parents and deaf children, decision-making process that is important for deaf children, parents fear for the independence of their deaf children, the possibility of success and adaptation of deaf children in a hearing environment, and the use of sign language as one of the communication systems. With insight into the above statements, which are isolated by discriminatory analysis, it can be concluded that these are the key factors that need to be considered when programming educational and rehabilitation procedures for deaf children. The results indicate that it is necessary to work on changing such attitudes through a systematic and professional approach, involving parents in direct work with experts and the deaf child itself. Based on the obtained information, it can be concluded that it is necessary to carry out activities of additional training of experts, which would aim to develop better models of counseling, education, and work with parents. 

Ethical Considerations
Compliance with ethical guidelines

All ethical principles are considered in this article. The participants were informed of the purpose of the research and its implementation stages, after which their written consent for participation in the research was obtained. They were also assured about the confidentiality of their information and were free to leave the study whenever they wished, and if desired, the research results would be available to them. 

Funding
This research did not receive any grant from funding agencies in the public, commercial, or non-profit sectors.

Authors' contributions
All authors equally contributed to preparing this article.

Conflict of interest
The authors declared no conflict of interest.


References
  1. Nelson HD, Bougatsos C, Nygren P; 2001 US Preventive Services Task Force. Universal newborn hearing screening: Systematic review to update the 2001 U.S. Preventive Services Task Force. Recommendation. Pediatrics. 2008; 122(1):e266-76. [PMID]
  2. Sass-Lehrer M. Early beginnings for deaf and hard of hearing children: Guidelines for effective services. Laurent Clerc National Deaf Education Center Gallaudet University; 2011. [Link]
  3. Goldberg D, Dickson C, Flexer C. AG Bell academy certification program for listening and spoken language specialists: Meeting a world-wide need for qualified professionals. The Volta Review. 2010; 106(1):129-43. [DOI:10.17955/tvr.110.2.m.636]
  4. Houston T, Perigoe C. Speech-language pathologists: Vital listening and spoken language professionals. The Volta Review. 2010; 110(2): 219-230. [DOI:10.17955/tvr.110.2.m.656]
  5. Quittner AL, Barker DH, Cruz I, Snell C, Grimley ME, Botteri M, et al. Parenting stress among parents of deaf and hearing children: Associations with language delays and behavior problems. Parenting, Science and Practice. 2010; 10(2):136-155. [PMID] [PMCID]
  1. Marschark M, Convertino CM, Macias G, Monikowski CM, Sapere P, Seewagen R. Understanding communication among deaf students who sign and speak: A trivial pursuit? American Annals of the Deaf. 2007; 152(4): 415-24. [PMID]
  2. Ching TY, Scarinci N, Marnane V, Sjahalam-King J, Button L, Whitfield J. Factors influencing parents’ decisions about communication choices during early education of their child with hearing loss: A qualitative study. Deafness Education International. 2018; 20(3-4):154-81. [PMID] [PMCID]
  3. Crowe K, McLeod S, McKinnon DH, Ching TY. Speech, sign, or multilingualism for children with hearing loss: Quantitative insights into caregivers’ decision making. Language, Speech, and Hearing Services in Schools. 2014; 45(3):234-47. [PMID]
  4. Aquayo MO, Coady NF. The experience of deafened adults: Implications for rehabilitative services. Health and Social Work. 2001; 26(4):269-76. [PMID]
  5. Freeman B, Dieterich C, Rak C. The struggle for language: Perspectives and practices of urban parents with children who are deaf or hard of hearing. American Annals of The Deaf. 2002; 147(5):37-44. [PMID]
  6. Fitzpatrick E, Graham ID, Durieux-Smith A, Angus D, Coyle D. Parents perspectives on the impact of the early diagnosis of childhood hearing loss. International Journal of Audiology. 2007; 46(2):97-106. [PMID]
  7. Hardonk S, Desnerck G, Loots G, Van Hove G, Van Kerschaver E, Sigurjónsdóttir HB, et al. Congenitally deaf children’s care trajectories in the context of universal neonatal hearing screening: A qualitative study of the parental experiences. Journal of Deaf Studies and Deaf Education. 2010; 16(3):305-24. [PMID]
  8. Kurtzer-White E, Luterman D. Families and children with hearing loss: grief and coping. Mental Retardation and Developmental Disabilities. 2003; 9(4):232-5. [PMID]
  9. Young AM, Sutherland H, Jones D, Starmer C. Issues and dilemmas in the production of standard information for parents of young deaf children - parents’ views. Deafness and Education International. 2005; 7(2):63-76. [DOI:10.1002/dei.27]
  10. Mitchell RE, Karchmer MA. Chasing the mythical ten percent: parental hearing status of deaf and hard of hearing students in the United States. Sign Language Studies. 2004; 4(2):138-63. [DOI:10.1353/sls.2004.0005]
  11. Kushalnagar P, Topolski TD, Schick B, Edwards TC, Skalicky AM, Patrick DL. Mode of communication, perceived level of understanding, and perceived quality of life in youth who are deaf or hard of hearing. Journal of Deaf Studies and Deaf Education. 2011; 16(4): 512-23. [PMID] [PMCID]
  12. Umar M, Muhammad F. Psychological problems faced by adolescent’s boys with hearing impairment [MA thesis]. Lahore: University of Punjab; 2007. According Abbas Q. Prevalence of Emotional Disturbance in Children with Hearing Impairment and Intellectual Disability. J Psychiatry. 2016; 19(1). [DOI:10.4172/2378-5756.1000350].
  13. Eleweke CJ, Rodda M. Factors contributing to parents’ selection of a communication mode to use with their deaf children. American Annals of The Deaf. 2000; 145(4):375-83. [PMID]
  14. Spencer PE, Gutfreund M. Characteristics of “dialogues” between mothers and prelinguistic hearing-impaired and normally-hearing infants. The Volta Review. 1990; 92(7):351-60. [Link]
  15. Lederberg AR, Mobley CE. The effect of hearing impairment on the quality of attachment and mother-toddler interaction. Child Development. 1990; 61(5):1596-604. [PMID]
  16. Zaidman-Zait A. Everyday problems and stress faced by parents of children with cochlear implants. Rehabilitation Psychology. 2008; 53(2):139-52. [DOI:10.1037/0090-5550.53.2.139]
  17. Neuss D. The ecological transition to auditory-verbal therapy: Experiences of parents whose children use cochlear implants. The Volta Review. 2006; 106(2):195-222. [DOI:10.17955/tvr.106.2.571]
  18. Jamieson JR, Zaidman-Zait A, Poon B. Family support needs as perceived by parents of preadolescents and adolescents who are deaf or hard of hearing. Deafness and Education International. 2011; 13(3):110-30. [DOI:10.1179/1557069X11Y.0000000005]
Article type: Original Research Articles | Subject: Audiology
Received: 2021/10/25 | Accepted: 2022/03/2 | Published: 2022/09/19

Send email to the article author


Designed & Developed by : Yektaweb