Objectives: This study aims to comparatively review the rehabilitation information systems in 8 countries: Canada, the United States, the United Kingdom, Sweden, Australia, Malaysia, Russia, and Iran.
Methods: A comprehensive review of published studies without a time limit was explored by searching the keywords, titles, and abstracts. Studies were obtained from the Web of Science, Scopus, PubMed, and Embase databases on May 2, 2021. We also did a Google search engine to explore rehabilitation information system websites in each country. The inclusion criteria included all English and Persian articles in the field of rehabilitation information registration systems or minimum data sets and the availability of complete text of the articles. A total of 13151 related studies were extracted and finally 25 main articles and 6 websites were selected. A similar standard checklist was used to extract and compare the findings. The data items in this checklist included reference, country, registry name, established year, founder, scope, standard classification systems (coding system), data elements, and subcategories of data elements of the registry.
Results: The literature review revealed that the United States has international rehabilitation outcomes in three areas of inpatient, outpatient, and pediatric rehabilitation that collect data from around the world. Australia has a national clinical registry for outpatient and inpatient rehabilitation outcomes for adults and children. Canada, with its national rehabilitation reporting system, gathers only adult inpatient rehabilitation information. In sweden, the Swedish Rehabilitation Medical Register includes rehabilitation activities in both inpatient and outpatient care. Rehabilitation in Malaysia with no data sharing and integration is still in its infancy. The rehabilitation information system in the UK only includes specialized rehabilitation services. In Iran, the Welfare Organization registers and collects (inpatient, outpatient, and home care) rehabilitation and financial data of the disabled with the “payment” system. In Russia, only some studies have proposed the launch of a rehabilitation information system.
Discussion: The results of this literature review demonstrate that the most comprehensive rehabilitation information systems first belonged to the United States, and then to Australia, Canada, Sweden, the United Kingdom, and Iran in descending order. Meanwhile, a rehabilitation information system is being developed in Malaysia. However, Russia has not yet developed a comprehensive rehabilitation information system.
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• The World Health Organization (WHO) estimates that 2.41 billion people need rehabilitation services worldwide, in 2019.
• WHO has called for some measures to respond to reinforce rehabilitation services worldwide by 2030.
• The rehabilitation information system is the most important step to accurately identify demographic information, improve clinical and functional outcomes, and provide the criteria for providing rehabilitation care services.
• In many countries, pilot studies have only been conducted in several sub-disciplines of rehabilitation.
Plain Language Summary
Globally, one out of three persons during a period of illness or injury require rehabilitation services. One of the most important measures to find the best evidence of treatment processes and outcomes is the accurate registration of data by a national standard tool. In this way, it is possible to confirm data commensurability and adaptability at the regional, national, and international levels. Therefore, creating and developing a rehabilitation information system to interpret and analyze the best treatment and monitoring measures is a must. We reviewed comprehensive rehabilitation information systems in 8 countries. Currently, a rehabilitation information system was not available in every country which is being integrated with other health information systems. However, in many countries pilot studies have been conducted in several sub-disciplines of rehabilitation, which does undoubtedly not meet the needs of the rehabilitation community. Future studies are recommended for the development of rehabilitation registration systems integrated with the national health information system.
Article type:
Reviews |
Subject:
Rehabilitation Management Received: 2022/03/25 | Accepted: 2022/10/31 | Published: 2023/03/1
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