Aarabi M A, Abdi K, Khanjani M S. Perceptions of the Parents of Children With Autism Spectrum Disorders and Healthcare Providers on the Challenges of Using Rehabilitation Services in Iran. Iranian Rehabilitation Journal 2021; 19 (1) :13-22
URL:
http://irj.uswr.ac.ir/article-1-1322-en.html
1- Department of Rehabilitation Management, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran.
2- Department of Counseling, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran.
Abstract: (4213 Views)
Objectives: One of the most essential needs of children with Autism Spectrum Disorder (ASD) is using rehabilitation services. However, these services are associated with numerous challenges. The present study aimed to identify the perceptions of the parents of children with ASD and rehabilitation service providers about the challenges of using rehabilitation services in Iran.
Methods: This was a qualitative study. In total, 27 participants were selected from the parents of children with ASD and rehabilitation service providers to these children, based on purposive sampling method; we considered maximum variation and sampling continued until data saturation. The necessary data were collected by semi-structured and in-depth interviews. The interviews lasted from July to December 2020 and MAXQDA was used for data analysis.
Results: The challenges of children with ASD in accessing and using rehabilitation services were identified and categorized into 6 main classes, as follows: the lack of a systematic support system; the lack of commitment to observing professional ethics; neglecting the structure and policy of rehabilitation; the lack of comprehensive ASD diagnostic and rehabilitation protocols; inadequate knowledge and attitude, and the lack of feasible access to services.
Discussion: Policymakers, service providers, and managers must be aware of the challenges of rehabilitation services for ASD; subsequently, they are expected to pay special attention to this issue. This study provided evidence for the above-mentioned groups for accessing and using rehabilitation services among ASD. Besides, the obtained data could help to improve the services they receive and their living conditions; ultimately, they help improve their quality of life.
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• This research has shown that there are serious problems in using and accessing rehabilitation services for children with ASD and their families.
• Rehabilitation services require serious long-term and short-term planning, as well as coordination between autism organizations and stakeholders. This can improve their living conditions and ultimately increase their quality of life.
• Our results provide a clear perspective for policymakers, managers and planners to change their perspective and consider ASD as a key part of rehabilitation programs to reform executive structures.
Plain Language Summary
This study was conducted to find the exact challenges of accessing and using rehabilitation services for children with autism spectrum disorder and their families. The results of this study were obtained through interviews with 27 parents of children with autism and rehabilitation service providers. The findings of this study divide these challenges into the following six groups: 1) Lack of a systematic support system 2) No commitment to the observance of professional ethics 3) Neglecting the structure and policy of ASD rehabilitation 4) Lack of comprehensive autism diagnostic and rehabilitation protocols 5) Lack of knowledge and proper attitude 6) Barriers to easy access to rehabilitation services.
Article type:
Original Research Articles |
Subject:
Rehabilitation Management Received: 2021/04/7 | Accepted: 2021/04/20 | Published: 2021/03/30
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